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Charity

lucasSharon & Gary / Reglaze fully support the Debra charity and have so far raised just under £10,000 with the help from our customers, colleagues, friends & family. This charity does not receive any government funding. Some of our lovely friends Peter & Dawn’s son Lucas was born with EB.

Many of us would probably sit and moan about the pain – NOT Lucas he takes it all in his stride – One of the bravest little men we have met .

Please take time below to read about the DEBRA Charity and the next time you decide to do a sponsored bike ride , swim , walk please raise your funds for this very worthy cause.

debra_logo

What is EB?

Epidermolysis Bullosa (EB) is a group of genetic disorders that result in fragility of the skin and, in some cases, other internal membranes and organs. Blisters, open wounds and sores form as a result of the slightest touch, rub or trauma.

Certain types of EB can be fatal in infancy and others are severely life-limiting. We estimate that there more than 5,000 people with EB in the UK, and 500,000 worldwide.

EB may be inherited in either a dominant (usually one parent carries the gene for EB and is affected by the condition themselves) or a recessive form (where both parents carry the gene but are usually unaffected, so the birth of an affected child is totally unexpected).

EB can also arise through a new spontaneous mutation whereby neither parent carries EB yet the gene mutates spontaneously in either the sperm or the egg before conception.

In dominant EB, there is a 50% chance of passing the disorder to children: in recessive EB the chance is 25%.

Rarely, a severe form of EB can be “acquired” as the result of autoimmune disease, whereby the body develops antibodies to its own tissue proteins.

EB can be divided into 4 main types: Simplex, Dystrophic, Junctional and the recently classified Kindler Syndrome.

There is currently no known cure for EB.

 
A letter from DEBRA…

Dear Mr & Mrs Blackmore

May I just put on record the Charities thanks for all the support you have shown over the last few years for a Charity like DEBRA who totally relies on voluntary donations such as yours it means a great deal to families living with EB. The recent charity ball that you held at the Midland Hotel was really a credit to you both & everyone had a great time.

Over the last few year’s you have managed to raise just short of £10,000 for DEBRA , this has enabled the Charity to fund vital research into finding lasting effective treatments for children and adults living with EB. I know only too well why you are both so committed to DEBRA due to your friendship with a local family that DEBRA supports in many ways.

Once again, many thanks to you both, for all your lovely support. I hope to see you both at the DEBRA Ball in Manchester in October.

Kind regards

Tony Eckersall
Regional fundraising Manager
DEBRA Charity

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